In this podcast, Prof Bernard Dan, Editor in Chief of the DMCN, and Prof Peter Rosenbaum review the book Children and Youth with Complex Cerebral Palsy: Care and Management, edited by Laurie J Glader and Richard D Stevenson. You can purchase the book here https://www.wiley.com/en-gb/Children+and+Youth+with+Complex+Cerebral+Palsy%3A+Care+and+Management-p-9781909962989
Children with complex cerebral palsy (typically, but not always, GMFCS levels IV and V) require skilled management and extensive expertise which can be overwhelming or intimidating for many clinical practitioners. This book explores management of the many medical comorbidities these children encounter, including orthopedic concerns, mobility and equipment needs, cognition and sensory impairment, difficult behaviors, seizures, respiratory complications and nutritional challenges, among many others. In addition, adaptable care tools are provided to guide clinicians in evaluation, preventive care and crisis management.
Importantly, the book includes contributions from parents of children with cerebral palsy and youth with cerebral palsy, providing unique and critical wisdom for family-centred care. Parents and families of children and youth with complex cerebral palsy will particularly appreciate the inclusion of chapters on adolescence, transition to adulthood, and growing up well with cerebral palsy.
• The first practical guide to focus exclusively on children with more severe or complex forms of cerebral palsy
• Summary points at the end of each chapter provide at-a-glance access to key recommendations
• Downloadable Care Tools include a Health Review for Children; an Equipment, Supplies and Supports Checklist; and an ICF-Based Care: Goals and Management Form
Mac Keith Press are a leading publisher of paediatric neurology books and the journal Developmental Medicine and Child Neurology (DMCN).